The Invisible Wall

In the Star Trek "multiverse", there's a material called "transparent aluminum". It's a metallic substance used as sheets to build things ... and it's as transparent as good-quality glass. Strength per  thickness of material a little above steel, weight far below, and of course ... transparent. So it's used for things like spaceship view-ports and "windows" and panoramic windows on space stations. Even (in ST-IV, "The Voyage Home") used to make an aquarium on a Klingon "Bird of Prey" starship to time-transport full-sized humpback whales to the future, in easily the funniest ST-Multiverse movie. (Look up "multiverse" if you need to ... )

I'm very familiar with the stuff ... "transparent aluminum", that is. It surrounds me. It's always there. It's that brain hard-wiring that I as an Aspy (Asperger's person) have that separates me forever from the ways "normals" (in physcho-speak, "Neuro-Typicals") think, speak, and react to others around them. Even, really, from most other Aspy's too. I "touch" (and therefore see) that wall so very clearly, having ALWAYS been on the outside of things. And over the last few years, having learned what (and a lot of why) those differences are, I even know the nature of the wall. And why it is permanent.

 Those on the other side don't see the wall at all. It's very transparency (from their side) convinces them that it doesn't, that it cannot exist. To them, it's not that there is a wall: I just don't behave as they expect, I say things they aren't expecting, or that are simply incomprehensible. The attitude and the belief on the other side of the wall is that there's no "real" differences between us, the problem is that I just don't behave like I "should". It's my ... fault? I need to just behave "more appropriately". I don't know how many times I've been told "We ALL have to learn how to behave ... you're no different, just watch and learn! You're plenty bright enough to do this ... everybody does!" The sometimes unspoken (but always present) thought is "unless you're a stupid insensitive dolt like you".

My most well-meaning friends and family have constantly told me the above, normally without rancor. And um ... others ... have told me the above with great malice aforethought. I appreciate the polite concerns expressed by friends, but in the end ... the communication is the same. But my brain is different, so the conclusion that so many "NT's" insist on, that I could learn to be like them, is fallacious. Not that it helps me at all ... going around telling people they are believing and acting on a fallacious premise is not the way to win friends and influence people. If there's a 'way out', I haven't found it yet. Neither attempting to correct the NT's appreciation of my differences nor simply allowing them to think ill of me has any positive effect. Except in rare instances.

So I remind myself that the ignorance here is not mine ... it's their's. Their hard-wiring "sees" things and inter-relates them in ways mine doesn't. In ways mine cannot. No matter how hard I try. I can work (and have) at understanding the many and constantly-varying patterns of NT  conversations. Theoretically. But lacking the hard-wiring to even notice so many of the small but vitally important signs they pass back and forth, I can't participate as an NT in a real-live conversation. I can't "pass".

But there's a lot more of them than of "us".  And really, most other Aspy's drive me nuts just the way we all do to NT's.  So it's their world, and it's "them" I want desperately to get along with. To be friends with. To communicate with. To have real, deep friends with, and to feel like somehow, someway, I belong in the wider world as a recognized, real, and valuable person.

But as an Aspy in an NT world, the best I can do is to try and be less "obvious", less "obnoxious", less "self-centered" ... less me. And as I cannot possible predict how different NT's are going to react to anything I say, the most assured way to be less Aspy is just to be quiet. To say very little. I fail at this all quite a bit of the time. And when I do, there's always the signs of failure ... the grimaces, the side-ways glances, the closed or rolled eyes, so many things that are so obvious even I can see them, that I've screwed up again. Ah yes, just hammered into The Wall again ... and it hurts every time.

Many of my Aspy/Spectrum peers are to a larger extent than I unaware of the reactions of NT peers. They may notice them, but aren't necessarily noticing it as constantly as I do. And John Elder Robison, Temple Grandin, and many others have said they wouldn't trade their special abilities for being an NT anyway ... they so love their gifts they'll take them and the pain of separation from the rest of humanity. My "gift" so relies on my being accepted by others to be of any use that the very unacceptability of my Aspy-ness seems to keep me from using my gift for anything but a child's toy.

The very "dry" professions where I perhaps could have found "usefulness" hold no emotional attraction for me. It's a very odd thing ... I'm too tightly-focused brainy-dweebish for the general population, and too emotional for the encyclopedic life. That's me alright ... and at times I laugh, at times I cry ... and I hug my one still-at-home kid or my wonderful (but sigh ... very NT wife) wife and we always just go on. It's what humans do, all of us ...

The Collaborative Shut-Out

A Major-League baseball team had an intriguing game recently ... a collaborative no-hitter (or "shut-out"). Something like five or six different pitchers were involved for their team, ranging from a few innings to a couple batters faced, yet none allowed a hit by a batter of the other team. It was a new record for how many pitchers collaborated to make a no-hitter. It may have been a record as a collaborative event in baseball, but ... it's nothing new or unusual for Neuro-Typical conversations.

Friend and fellow "free-range Aspergian" Bryan made a comment a few posts back that for Neuro-Typicals (NT's for now?), conversations are essentially a collaborative process, rather than each person actually trying to communicate their thoughts individually. That conversations aren't composed of individuals sharing their own thoughts with the group so much as a "thought-process" being shared by the group.

Fragmental thoughts shared and combined as a collaborative thought process ... that is as NT as you can get. I think that is especially the form that general time-killing/filling conversations take among NT's. Someone starts things off saying "X" ... which may be either a complete "classical" sentence or two, or perhaps just a clause of a sentence, a fragment of a thought. Someone else will say some other little bit that in some way seems to them have something to do with the first thought-fragment; then another makes a similar fragmental comment but ... spun to something a bit different. Then someone else makes a comment that somehow takes off from the last fragment (but to what seems for us Aspy's a completely different subject matter), and the process repeats itself. Over and over.

As close to "normal" as I appear to most people, this sort of discussion is a LANDMINE waiting to explode around me (and all other Aspy's) any moment. It's based heavily on that shared data-flow of eye/vocal/facial/body/breath inflections that NT's gather without needing to think about, and which shapes their concepts of "what" the conversation is about each moment. 

Remember the explanation above ... the part where I noted the spins and take-offs to what seems a different subject matter? Think about any "general" conversation you are part of. The subject matter of the words does jump around a lot ... but yet in reality to the NT's, the conversation apparently continues without such a jump. All the NT's there seem to understand the links between the "apparent" jumps, or at least, understand that this shift in word-subject is simply part of continuing the same conversational pattern of the group. It is the pattern of  the conversation that is really the main shared communication. This group collaborative-talking process.

We Spectrumites may see some of the 'connecting' pieces between the fragments, and we may say something that feels a 'fit' to the other NT folks there. But no matter how hard we study NT's in real-life, in real-time we will miss probably 80% or more of the full information the rest of the group gets from each comment/commenter.There is no way we can track such complicated thought processes based on data we don't even "see". We're going to say something ... wrong.

I've studied such conversational patterns for many years now. I've had them analyzed and detailed for me by close friends and delightedly blunt enemies. For most of my life, the explanations have been given by people assuming that if I had half a brain and was actually concerned enough about other people and not so self-centered, I'd learn it ... quickly. And that the only reason for not gaining the understanding they were trying to teach to me was if I did not really want to learn how to get along with others. If I was ... selfish. Self-centered. A boor. Thoughtless. A pig.

After one is told this so many times, well, it must be true, right? John Elder Robison talks of how he heard the same comment so many times as a child, from SO many people (from school counselors and teachers to family members and strangers), that it must be true. However odd it seemed to him, they couldn't ALL be wrong. He was clearly a self-centered psychopath/ax-murder-in-waiting! He actually felt he should study which kind of prison he should "aim" for when he finally became what they all saw in him. Not because he felt any urge or inclination to become an ax-murderer/psychopath, but simply because EVERYONE around him couldn't be wrong, could they? (By the way, Federal prisons are better.)

Well ... they were wrong. John wasn't a self-centered psychopath in any way shape or form. His brain was just wired differently, so his interactions appeared differently and were misinterpreted by those around him. Seriously misinterpreted. But my corollary of the last post still applies: this is a two-way smash-up in progress. They misinterpreted him, just as he misinterpreted them.

And just as I and those around me do. And those wonderful little conversational jumps that aren't really jumps? I haven't a clue how they work to NT's. An NT says one set of words that (to me) completely changes the "apparent" subject matter of a flowing conversation ... but it isn't a change to the conversational pattern. Yet any slight change in "apparent" subject matter that I might provide is quite possibly going to be seen as a rude and dismissive commandeering of the group's conversation. With the other folks shaking their heads at how thoughtless I am.

I can't get it, and I certainly can't "win" at conversation either, though I've gotten better at fighting it to a draw or at least a stand-still. Participation is Hell on wheels, and staying aloof and "outside" is not much better. I know that if I say anything, eventually (and sooner rather than later) I will insult or anger someone or multiple someone's. Or at the least, I will be taken as thoughtless, boorish, self-centered, egotistical, and rude. If I don't say anything, eventually I will come across as either disinterested in others, ridiculously shy, or lacking in proper social graces by refusing to engage with others in "proper" social interactions. A self-centered boor by a different means.

But life is a participation sport, just like baseball. It's a "purist" sport, however. No designated conversationalists or relief-talkers allowed ... but oh well, many consider the designated hitter an apostasy even in baseball.

LIving a Spectrumite Life in an En-Ty World

Some of my peers choose humorous ways to talk about living as a member of the Aspergers/Autism "spectrum", such as John Elder Robison's self-created title as a "Free-range Aspergian". That has a bit of whimsy, of "cuteness" to it, doesn't it? Mr. Robison and Temple Grandin (another noted Autistic/"Spectrumite") even make the point both in their books and their lecture appearances that they wouldn't want to change anything about themselves or their presence "on the spectrum". They're comfortable being who and what they are. They feel of those of us with Autism/Aspergers ... conditions? ... have also been given enough advantages over "Neuro-Typicals" that they prefer life on the spectrum. Or, as I call it, being a "Spectrumite" versus being an "En-Ty".

For me, learning about my own hardwired limitations as a Spectrumite these last couple years has been brutal. Just as brutal as living on that spectrum has been for lo these 58 years. Yes, I finally have some understanding of how and why interpersonal communications and relations for my entire life have been ... "odd". For both myself and everyone around me, as I'm very aware that I do continually cause confusion and discomfort in others. I understand why some people react so strongly, so negatively,  on just being in a room with me. Why so many attempts at simple conversations go so ... uncomfortable. In three sentences or less.

But for all those years before "understanding" attacked, I kept up an optimism that someday, somehow, I'd figure out how to blend in with most people. How to get along, have "normal" conversations at parties and professional meetings; even how to relate with people without seeing the faces of this or that person simply cringe upon seeing me for the first time, and before I've even said a word to them. Because, yes, I've always seen this happen, and yes, it has always hurt. Not everyone reacts to me with such dismay, and yes, I have managed a few friends over the years. But I've not seen my friends and acquaintances receive such reactions ever. I do.

As someone who'd been a Secondary-Education/English Lit major in college, and an acquaintance of people with Autistic/Aspergers kids, I knew of the existence of the "Spectrum". But it was out there, of course, not ... here. Then a few years back, in short succession I had both a 5-year old son and a 26 year old daughter (a grad-school  student in a Lutheran Seminary) diagnosed as "on the spectrum". For him, the diagnosis was high-functioning Autism; for her, Aspergers.

For an involved dad like myself, this was quite a jolt. As a very active parent, I set out to learn the differences, the determining factors, of being "on the spectrum" as opposed to being "normal", with my typically intense ability to focus and absorb. What did this mean in REAL terms, and ... how does one mitigate the known problems? What do you do after the diagnosis?

During those studies, with the focus and passion that (I would soon learn) those of us on that spectrum are so often capable of, and with the firm (if unappreciated!) nudge of a close friend, I came to the inevitable if startlingly uncomfortable conclusion: two of my children, my self, and my late father all existed on that same spectrum. I didn't like the conclusion one little bit. But ... I am an analysis whiz. It is one of the few things I'm hot at. And once I started looking at the possibility of my own 'existence' as a Spectrumite, I couldn't find any missing pieces. All I found was supportive evidence. Solid supportive evidence. A lot of solid, supportive evidence.

When I first mentioned this idea (of my "inclusion") during a meeting with our son's teachers and specialists they had no reaction at all. Or rather, not verbally. They just looked sideways at each other, and ... the meeting moved on. It seemed it had been obvious to them earlier in our 'relationship'. Checking in with a couple of them later ... well, yes ... they had all noticed the rather obvious link, and had even discussed it among themselves long before it had occurred to me.

Would a test be useful, I mused? (Note: I was still looking for an "out", a possibility that my conclusion was wrong.) The response was disheartening: Um ... well ... no, not really, it would mostly be a waste of time and money; I was certainly welcome to go get tested, but ... the direct answer was that while I may not look and seem to most people to be "obviously suffering" from Autism/Aspergers, to someone who works in the field ... I light up the indicator lights all over the board. Bluntly, if this is a game of tag, I'm "it".

As I noted at the beginning, both John Robison Elder and Temple Grandin are comfortable with (or actually prefer) being a Spectrumite to being an En-Ty. At the present time, I can't join them "there". Maybe someday. I've been so aware my whole life of the difficulties I have both in business and personal situations, of some interference with my ability to communicate specific meanings and ideas on a predictable, solid basis to other humans, that finding out that there really is no solution to my problem isn't ... comforting. I've struggled mightily with the loss of hope. I've have many damn rough days and nights.

I've had to realize that for all it's prowess and capabilities, my brain doesn't use language quite like any of the En-Ty's I know or work with. Not even my wife and closest friends. This limits everything I try to do to such an extent that at times I wonder why I even bother trying anything. Having learned it's a permanent hard-wiring problem, I keep looking for the equivalent of a software "patch". Some way to actually get my thoughts out "there" such that others can understand the depth and width of what I try to communicate.

I'm not having any luck. Knowing the cause hasn't provided (at least yet) any assistance at amelioration. There has been a ton of new emotional baggage to work through, not least of which is the realization that ... this is permanent. There may be no fix for my communication/interpersonal struggles.

The supposed definition of insanity is trying the same action over and over and expecting a different outcome. But all I've got left is to keep trying to improve my ability to communicate with the En-Ty world I live in, and hope that eventually I'll find a way to maybe double the percentage of accurate  'content' I manage to get across. Someday, someway, I'll maybe hit a 4% -transmission of ideas to someone. It ain't much ... but it would be better than I'm getting now. It would be ... something.

It would bring so much hope back ...

The Brave New Marketing

The brave new marketing is Facebook, Twitter, and the whole gamut of social-networking. Rod Evans, a photographer who is both a wonderful artist and good at social-networking (hereinafter referred to as S-N), has a very good audio interview out on the subject. You can find it at "Behind the Camera Talk" ( http://www.behindthecameratalk.com/?p=52 ). In the 10 or 15 minutes of this audio interview, he explains both what this (S-N) is, and how it currently works, better than any other explanation I've seen.

He notes to begin with, that this is based on how we as humans meet and mix at light social functions, like parties. If you go to a party, step up on the sofa, and say, "Will everyone here please be my friend" they're going to think you are weird and avoid you. But if you just play it cool as you would in real life, you can make a number of friends by say, offering to take them out for a drink after making their acquaintance and getting a pleasant exchange of light conversation going. And he goes on to explain the way that you use your product within this milieau, instead of a drink, to please folks and gain acceptance and a growing circle of "friends".

It explains to me exactly what is happening in the pages of the people who are VERY successful at this brave new world of S-N, and why I don't have a clue how to fit into their "conversations". As the fitting father of two children somewhere on the Aspergers/Autism spectrum, though not far enough out on the spectrum to be noticeable myself, I do not "get" light party-type conversation. It seems aimless, pointless, and mentally scattered to me. A riddle I've never understood, and a jungle in which I am utterly lost.

This is the kind of talk that to my brain sounds like: "Loved the blue sky today | yea but I forgot my shades | didn't hardly see the car ahead of me | you never see anything anyway | Jonah's got a lousy cell | my texting was over-limit last month | my neighbors' built a new wall and it's UGLY | the new one in front of the place on 15th is cool | I can't believe the new Bachelor is that snarky | I wish I could go to see the Druids play on the 27th ...".

I have never been able to fit into those conversations with any degree of aplomb. In fact, a high degree of dabomb is more like it. This type of conversation twists and turns and never seems connected to any thought pattern and never ... gets anywhere. What is the purpose? What does it do? And why is anything anyone says in this conversation of interest to anyone else in the conversation? Most of the time, they don't even seem (to me) to be paying attention to anyone else's comments.

These flowing, burbling, rocky, twisty streams of words clearly are interesting to those "normal" folk who get it. Why is it so interesting for some people to note on their Facebook or Twitter that they are stuck in traffic? Why is someone's poorly-worded chocolate craving post a matter for 20 follow-up posts by howling others?

Intellectually I do know what is different my comments. There is some kind of rule-set, some pattern to the patter, some vague pathway that others sense and fit their words into. I am totally blind to this ... whatever it is ... and so, I'm never on the same path as those around me.

This brave new marketing world is rather depressing for someone coming from my vantage point. The straight marketing of a superior product through all the "old" marketing tools is passe. It is now the marketing of the hip/cool/haughty/whatever-is-hot persona that scores. Yet how does someone like me compete in this marketplace? I'm not the only one in this wilderness, and there have to be ways for "us" to win too.

I, like James Tiberius Kirk of Star Trek fame, do not believe in the no-win scenario! But this has me stumped. I'm having a great deal of trouble figuring this one out. I am very open for answers out there in the great beyond. Help, anyone?